Today is World Lupus Day

[biggs682]

Today is world lupus day , a little known condition that can have totally different effects on sufferers .

http://www.lupusuk.org.uk/latest-news/world-lupus-day-may-10th

 

[ColinJ]

It would be much better to put the subject in the thread title because many people would not bother to enter a thread like this to find out what it is about! "Today is World Lupus Day" would get far more people interested.

I skim through thread titles to see which threads to take part in and normally skip by cryptic ones like this. I only ended up here because I clicked the wrong link!

I remember reading about Lupus when researching clotting after my own health problems, and clotting being one of the potential dangers of Lupus.

 

[Ganymede]

I didn't know this - and my stepdaughter has lupus. It was sparked off by her pregnancy, as it often is in women - it's an autoimmune disease, I've heard it likened to rheumatism but in the soft tissues. As you say it can have many different effects and can be a difficult condition to live with. Luckily it seems better understood these days - my girl goes to a centre at St Thomas' in London to help manage it.

Thanks for flagging it up, biggs682.

 

[Lullabelle]

As well as other health problems my mum has been diagnosed with lupus.

 

[Ganymede]

As well as other health problems my mum has been diagnosed with lupus.

Sorry to hear that Lullabelle, I hope she is getting the help she needs.

 

[EltonFrog]

Blimey! I've never heard of it. Thanks for flagging it up, it sounds horrid.

 

[Lullabelle]

Sorry to hear that Lullabelle, I hope she is getting the help she needs.

Thank you. She has a long history of health problems and has recently spent a lot of time at the hospital having various checks and procedures. Although she has been told to stop using her inhalers because she doesn't have asthma so that is 1 piece of good news.

 

[biggs682]

@ColinJ thread title changed as per your suggestion .

@Ganymede my partner suffers with it too and we have been to St Thomas's who helped a lot but she has good and bad days with this and other ailments

 

[Lullabelle]

, Lu

Thanks Rocky

 

[ColinJ]

Yes - best wishes to anyone suffering from that horrid condition!

 

[Ganymede]

[USER=33330]@Ganymede my partner suffers with it too and we have been to St Thomas's who helped a lot but she has good and bad days with this and other ailments[/USER]

Well as I'm sure you're aware, lupus sufferers really need a supportive partner - we are lucky that our son-in-law is an absolute treasure and a brilliant, hands-on dad. I am sure your partner is lucky too :hugs:


Edit: no idea how this came out in blue as a link. It isn't one! Soz.

 

[Lullabelle]

My dad retired about 10 years ago and over time has had to take on more responsibility as mum's health got worse. She is a tough cookie and tries to stay as independent as possible she doesn't sit back and bleat 'oh poor me' she just gets on with it and I respect her for that. Some days are easier than others...

 

[Ganymede]

My dad retired about 10 years ago and over time has had to take on more responsibility as mum's health got worse. She is a tough cookie and tries to stay as independent as possible she doesn't sit back and bleat 'oh poor me' she just gets on with it and I respect her for that. Some days are easier than others...

My daughter finds the same thing - ups and downs. She has tried various dietary adjustments and now avoids gluten which seems to help. She's not one for "fads" but this has genuinely helped and now we keep a sliced loaf of "Genius" brand bread in the freezer for when she visits. She reckons it's the least horrible of the gluten-free breads, especially the seedy variety.

 

[GrumpyGregry]

Juli Fertardo, first female world MTB champ had her career wrecked by it.