Pacemakers, anyone have one?

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colly

Re member eR
Location
Leeds
Two years ago while out for an early morning ride and making for home, I woke up, on the grass verge, confused and dizzy and wondering what had happened. Long story cut very short, my heart had missed a beat, probably several. From my Wahoo readings I was out for around 4 mins or so. But wouldn't you know the battery in my chest strap was dead so I have no recordings of my pulse at all.
I went through A&E and had every scan known to man, Cat Scan, MRI, another one I can't recall the name of, echocardiogram, umpteen ECG readings, but no real evidence of much amiss. I went home the folowing day with a 7 day HRM fitted.
So after the results were in It was suggested I may need a pacemaker fitted. I do have raised BP. The suggestion was that the signal from the top of the heart was not being sent effectively to the bottom chamber. As a consequence the bottom chamber wasn't beating in co-ordination with the top one.
The solution I was told was a .... pacemaker!
I was reluctant tbh. I spoke to the consultant and he was understanding and wasn't at all pushy about me accepting I needed one. However I had another spell of dizziness while at home and realised it clearly wasn't a one off event. It also, I realised, had an effect on my mental state in that I was riding far less often and was prone to finding excuses not to ride.
Anyway last November I had a pacemaker fitted. No issues with the surgery at all and after I had healed I was given the all clear to carry on as usual, including cycling if I so wanted.
In the New Year I was back out and it was all ok. No worries about keeling over and even though I had lost a good bit of fitness I was set fair.

Up until April that is.

I was out and climbing through a village up a short sharp climb and seemed to be like bloody hard work, I mean like it was 25% rather than the 9% that it was. I glanced down and saw my HR was in the mid 60s. Pulling over it felt like the end of a long days hard cycling. I was whacked out. I made for home.

I was given an appt. at the pacemaker clinic first thing the following morning, where the settings on the device were altered. Twice more I have been back so the settings can be adjusted to try to stop this happening. Then last week, after the third visit, I was given a 24 hour hrm to give them a better idea of whats going on. I was asked to go on a typical ride and make a note if anything similar happened again. (i'm not sure it did). I'm awaiting the results now.

What it seems to me, to be happening (as it did yesteday morning), is that when my body is calling for a greater heart rate the pacemaker is keeping it artificially low, or letting it climb and then suddenly restricting it. Plodding along on the flat I'm fine, but sometimes, not always, when it comes to a climb maybe even a gentle rise I begin to struggle.

To say its disconcerting is putting it mildly.

If any one here has had a similar experience I would be please to hear what your solution was. If any.

Edit: On my last visit there were two medicos, the pacemaker guy and I think a cardiac surgeon. He said that pacemakers in general are made for 'the average person'. Runners, cyclists and people who are active in later life are not 'average'. There are pacemakers that have in inbuilt motion sensor which can tell if a body is jogging etc, but cyclists pose a problem there too because the motion sensor won't pick up the motion because cycling is a smooth activity.

I guess it pays to be 'average'.
 
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stephec

Squire
Location
Bolton
Is your device not one that can be read remotely by the medical team?

My lad had a cardiac arrest nearly eight years ago and had to have a implanted defibrillator, it's got a monitor with it where every three months or so it transfers all the data on it straight to the hospital so that they can look at it and make any recommendations.
 

Drago

Legendary Member
An old boy I know has one.

He ran marathons into his early 80s, and during one GP visit his doctor noted his low pulse. He said "yes, I've been running marathons for 60 years" but that didnt cut any ice and they set him up with a pacemaker. He said to me a little while after, "I've never felt so s*** in all my life." That was the end of his running days and he suddenly seemed to get old after that.

I have a very low pulse, a genetic trait inherited from my father. If they try that with me theyll be told to jog on.
 

postman

Squire
Location
,Leeds
sease-awareness-coffee-mug-20231102085100-hvydj5ul.jpg
Bought you a mug for your rest stops,all the best from me here.
 
OP
OP
colly

colly

Re member eR
Location
Leeds
Is your device not one that can be read remotely by the medical team?

My lad had a cardiac arrest nearly eight years ago and had to have a implanted defibrillator, it's got a monitor with it where every three months or so it transfers all the data on it straight to the hospital so that they can look at it and make any recommendations.

I have a bedside device which speaks to the pacemaker. It's got a dingle which sends the data. I'm not sure how much information it collects or how often it transmits it though.
 

ColinJ

Puzzle game procrastinator!
I'm sorry to hear about these problems, @colly. I found a few people discussing issues like that on Reddit and a pacemaker forum. Apparently, there is a type of pacemaker that monitors breathing rather than movement to detect when you are exercising. It might be worth asking about one of those as an option?
 
OP
OP
colly

colly

Re member eR
Location
Leeds
I'm sorry to hear about these problems, @colly. I found a few people discussing issues like that on Reddit and a pacemaker forum. Apparently, there is a type of pacemaker that monitors breathing rather than movement to detect when you are exercising. It might be worth asking about one of those as an option?

I've been reading about those today as it happens. Something needs to change that's for sure.

The NHS for all faults and issues has, for me, been magnificent. One call and I'm in the following morning. Even with the fitting of the PM to begin with. I was called in to have a loop recorder fitted. Because initially it wasn't clear what was happening. This was planned and I attended for the fitting. During the fitting of this recorder the surgeon asked me a few times how I felt, was I ok etc. So after it was in I was waiting to be given the OK to leave when he found me and said that while they were fitting the recorder they could tell from the HRM that was in place, that I had suffered another incident. I felt nothing btw. So now they knew what was going on they knew what was needed. And, if they had the right PM in, would I be happy for them to replace the loop recorded and put in the PM.
90 mins later I was a bionic man.
 

nogoodnamesleft

Well-Known Member
I was out and climbing through a village up a short sharp climb and seemed to be like bloody hard work, I mean like it was 25% rather than the 9% that it was. I glanced down and saw my HR was in the mid 60s. Pulling over it felt like the end of a long days hard cycling. I was whacked out. I made for home.
Sounds like my experience does not apply to you as you mention a chest strap (HR monitor) but couple of years ago I got a top of the range Garmin watch (wrist HR sensor). Then I started noticing after an hour cycling my HR from the watch would drop to around 60. So I'd really push hard for a bit and it would stay around 60 (my typical resting HR). So I'd stop and take my pulse the old fashioned way (fingers on wrist with a clock) and Garmin was just badly wrong. Out of interest I purchased an entry level Polar chest HR (on amazing offer) and Garmin completely wrong - start of ride the two would agree but after a bit Garmin went very low.

Discussed with others and somebody suggested Garmin might be recording just every other heart beat but they were not medics and I sent the Garmin watch back as a useless toy.

Polar chest monitor recording has always made sense in relation to what I'm doing on the ride (hills, speed, wind, etc.).
 

Ming the Merciless

There is no mercy
Location
Inside my skull
Sounds like my experience does not apply to you as you mention a chest strap (HR monitor) but couple of years ago I got a top of the range Garmin watch (wrist HR sensor). Then I started noticing after an hour cycling my HR from the watch would drop to around 60. So I'd really push hard for a bit and it would stay around 60 (my typical resting HR). So I'd stop and take my pulse the old fashioned way (fingers on wrist with a clock) and Garmin was just badly wrong. Out of interest I purchased an entry level Polar chest HR (on amazing offer) and Garmin completely wrong - start of ride the two would agree but after a bit Garmin went very low.

Discussed with others and somebody suggested Garmin might be recording just every other heart beat but they were not medics and I sent the Garmin watch back as a useless toy.

Polar chest monitor recording has always made sense in relation to what I'm doing on the ride (hills, speed, wind, etc.).

All to do with angle of wrist etc when cycling. known problem with any manufacturer of wrist based heart rate, not just Garmin. Watches are better for running where wrist remains straight.
 

nogoodnamesleft

Well-Known Member
All to do with angle of wrist etc when cycling. known problem with any manufacturer of wrist based heart rate, not just Garmin. Watches are better for running where wrist remains straight.
Trouble is, when your main sport is cycling and you are not interested in 24/7 data collection it makes the device little more than just a watch.

I also found other shortcomings in the Garmin system eg it kept automatically recording me as having afternoon snoozes and you couldn't disable that detection and couldn't delete the snooze events from the Garmin Connect record. (I don't snooze during the day).
 
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