Rheumatoid arthritis - any experience?

[kingrollo]

Did you find any that actually provided any efficiency other Cannabis derivatives. From the research of course.

I never to got to try them - because my heart meds meant it was a no go.

But the one that seemed the most promising was Terry's curamin.

Do be aware you probably won't find any solid evidence that these work - I was using Google to try and defy medical science. But I was in a pretty dark place at the time - I was that desperate I just wanted some hope.

Luckily after my A+E admission for severe lower back pain. I was persuaded in the very short term to take some pretty hefty pain relief drugs - and begin some mobility work very gently. The lesson I learned was to trust someone who has examined you over Google !!

 

[kingrollo]

Only higher doses it says and apparantly the blockers can also lower D levels.

Having had a HA in June - I'm not taking any chances !!

 

[albion]

I think most people go down the steroid route at the early stages to reduce symptoms but if it does go down the RA route I am sure a rheumatologist would go through everything in depth, but hopefully it won't come to that.

I did high cycling mileages and walked about 10,000 steps a day on my feet too. The shoulder pain also meant I could not use my rear cycle pockets, pain being far more too intense on movement.
Both foot and shoulder pain are still there but 95% alleviated by the ebike and no walking.

RSI was the main cause but my doctor encouraged me to take D after the docs tested it and found it quite low.
I have no idea if D helps but if you try googling 'is D implicated in (insert topic) ' AI overview says yes to one heck of a lot. I slightly doubt any other vitamin 'likes to say yes' as much. AI also mentioned a 'sweet spot' in levels, alleviating the risks of high and low levels.

 

[kingrollo]

Update - the results are in the app - obviously I don't have the knowledge to interpret them properly - but they are showing normal no action.

Looking promising.

 

[kingrollo]

I did high cycling mileages and walked about 10,000 steps a day on my feet too. The shoulder pain also meant I could not use my rear cycle pockets, pain being far more too intense on movement.
Both foot and shoulder pain are still there but 95% alleviated by the ebike and no walking.

RSI was the main cause but my doctor encouraged me to take D after the docs tested it and found it quite low.
I have no idea if D helps but if you try googling 'is D implicated in (insert topic) ' AI overview says yes to one heck of a lot. I slightly doubt any other vitamin 'likes to say yes' as much. AI also mentioned a 'sweet spot' in levels, alleviating the risks of high and low levels.

Well my vitamin d levels were checked and within normal range.......but only just.

I will chat to my GP when I discuss the results in a couple of weeks. Thanks for the heads up.

 

[albion]

Sorry, age was also part of the main cause, though I do recall , that even when young, I got stiff feet and painful neck driving.

 

[Psamathe]

Well my vitamin d levels were checked and within normal range.......but only just.

In my personal experience "normal" ranges are subject to sensible interpretation from medical professionals ie they are general rather than hard limits. Based purely on personal experience where several of my FBC results have been significantly outside the quoted "normal" ranges and getting worse and GP sort of says they are OK because another result is within range - hence the interpretation from somebody who can interpret considering you (age, health, symptoms, etc.).

Another example is couple of years back GP Registrar (trainee GP) did a urine test that came back with low but out of range blood in urine reading. I was relaxed about it (I cycle ...) and trying to persuade her from even more tests chatted to a different (fully qualified) GP at practice who checked result and commented that level was out of "normal" but not high enough to worry about and they'd just retest in 6 months.

 

[albion]

Well, it is normal for older people to be quite deficient in lots of vitamins.
I imagine a good immune system will outweigh all.

 

[Webbo2]

I never to got to try them - because my heart meds meant it was a no go.

But the one that seemed the most promising was Terry's curamin.

Do be aware you probably won't find any solid evidence that these work - I was using Google to try and defy medical science. But I was in a pretty dark place at the time - I was that desperate I just wanted some hope.

Luckily after my A+E admission for severe lower back pain. I was persuaded in the very short term to take some pretty hefty pain relief drugs - and begin some mobility work very gently. The lesson I learned was to trust someone who has examined you over Google !!

I looked for things that might help with Osteoarthritis and Turmeric has been seen to have an inflammatory effect in some trials which gave people pain relief. Interestingly my wife’s old GP recommended to her.

 

[kingrollo]

I looked for things that might help with Osteoarthritis and Turmeric has been seen to have an inflammatory effect in some trials which gave people pain relief. Interestingly my wife’s old GP recommended to her.

Not compatible with blood thinners I'm afraid.

 

[Webbo2]

Not compatible with blood thinners I'm afraid.

Pity I started taking it for chronic arthritic wrists and it seems to have had an immediate effect. Even if it’s a placebo one I’ll take it.

 

[the_mikey]

Unexplained pain in my foot and unexplained upper back pain between shoulder blades.

GP has booked me in for blood tests to rule out RA ....2025 being the year from hell ....I'm fearing the worst ..

Any experience with this disease . I'm 62.

Wait for a diagnosis!

But in terms of experience, my partner has RA, it's managed with immunosuppressant medication and exercise. In the early years she was treated with steroid shots and methotrexate, she's on a different medication now and rarely needs steroids, she does Yoga, dancing, cycling, and goes to the gym, also works in a hospital, it's annoying and inconvenient but don't give up, it doesn't mean throwing life in the bin.

 

[Ian H]

Wait for a diagnosis!

But in terms of experience, my partner has RA, it's managed with immunosuppressant medication and exercise. In the early years she was treated with steroid shots and methotrexate, she's on a different medication now and rarely needs steroids, she does Yoga, dancing, cycling, and goes to the gym, also works in a hospital, it's annoying and inconvenient but don't give up, it doesn't mean throwing life in the bin.

Yes, rheumatoid arthritis is an auto-immune disease, different from osteo which is mostly wear and tear. A friend had it quite badly some years ago. He's now in remission and back riding masters' races and TTs.

 

[Psamathe]

Not compatible with blood thinners I'm afraid.

I would suggest discussing "compatible with blood thinners" with your GP/consultant (whoever prescribed them). Clearly different blood thinners have different interactions but my Mum was on blood thinners for many years and took a fair number of supplements for arthritis.Might be some could be OK or some supplements would help different blood thinners might be fine.But only the prescriber would know and in the context of other conditions.

 

[albion]

Yes, rheumatoid arthritis is an auto-immune disease, different from osteo which is mostly wear and tear. A friend had it quite badly some years ago. He's now in remission and back riding masters' races and TTs.

Often it is a mix.