Last night, Sunday, I slept very badly. By 5.00am I was tossing around wondering what the future holds for me. I was tired, could not sleep and my brain was working overtime trying to decide what would/might happen. I felt I was likely to be a physical and mental wreck for the rest of my life.
I imagined this is how depression begins and had resolved to speak to my friends who suffer from the illness. In the hope they could help, not sure about this at present.
I'd decided who I was giving my bikes to as I couldn't see me ever riding again.
It's 11.40pm, Monday, and I've been awake all evening. I can even recall what happened all day. The last 2-3 hours I've felt better than in the last four weeks - much more like myself.
My wife, lads, some cycling buddies and one very special friend have pulled me through a very dark time. I'm not sure what I can do for them but really hope I wake up feeling this positive - though no one is getting my bikes, yet!!
From someone who hasn't been through what you've been through, but lived with epilepsy lifelong, you need to find something you can do inside(if outside is a problem). Give your mind a diversion, as much as anything else.
Try not to let the condition rule your life. It places limits on what you can do, legally, but other than that...
You asked elsewhere, a few years ago, had anyone experience of grand mal fits/siezures. For me, after one, the best I can describe how it feels is having run a marathon with no prior training and having had "the wall" fall on me.
Getting t-boned by a car didn't hurt as much. And whilst I've been slowed by it, it will never stop me. Driving and flying are the only things that can't be done. The driving for everyone else's safety, imagine me on the road, the roads would be empty!
The flying due to the business and their demands. Besides the price of flights these days.
Nearly everyone has commented on me not sleeping much. Often it's similar to yourself. Often after a siezure, when moving is awkward. Currently on 4 - 5 hours a week sleep.