Anyone got kidney !

[hondated]

You quietly fill up with fluid and toxins poison your internal bits. It is almost symptomless.
I was literally half an hour from death according to the medics. Years ago now, but treatment lasts forever-unfortunately.

RR That's frightening to read and the fact that its a no symptoms illness is worrying. So much so having read it last night I had a restless nights sleep .
Goggled it today and realised that the bananas and Allbran breakfast I have been eating for years is not the best thing to eat. The 8th cannot come fast enough now. Hope your medication is continuing to keep you ok.

 

[hondated]

My 9 year old has cogenital acute polycystic renal failure , with meds he has 30 % kidney function and he does get tired quicker than normal, they are now talking about growth hormone treatment as my 4 year old is the same height.

CK need to first explain the like. Only liked because of your story and not because littleun has renal failure. I am sure you realise that anyway but just in case.
Well that really puts things in perspective doesn't it. At 65 how can I complain when your littleun at 9 is suffering from renal failure. That is just not fair.
By asking the question I do have a better understanding of the problem I might have so its been worth posting but at the same time its not nice to read about children such a yours having a problem at such a young age.
I can only hope that the growth hormone treatment helps with the problem and at least improves the quality of his life. Hopefully sometime we will all read him and his sibling are out on their bikes with you.
It would also be great to read in the near future that medical science had advanced enough to deal with this issue in a more efficient way .Ted

 

[Saluki]

See your GP ASAP. My husband is on dialysis and awaiting transplant. Don't let it get that far. If you doc said they were going to monitor you and then didn't, is a good reason to see your GP and nag them.
I donated my left kidney to Hubs but it failed due to an auto immune disease after 5 years. I have annual monitoring and, if they are late with it, I ring them up and werritt at them until I am seen for the relevant tests.
Seriously, don't dilly-dally, get on to your doctor first thing tomorrow.

 

[Roadrider48]

See your GP ASAP. My husband is on dialysis and awaiting transplant. Don't let it get that far. If you doc said they were going to monitor you and then didn't, is a good reason to see your GP and nag them.
I donated my left kidney to Hubs but it failed due to an auto immune disease after 5 years. I have annual monitoring and, if they are late with it, I ring them up and werritt at them until I am seen for the relevant tests.
Seriously, don't dilly-dally, get on to your doctor first thing tomorrow.

I've had two transplants. The first failed due to rejection and the second is(touch wood) still going strong.
My wife offered me a kidney but I refused it because I didn't want her to have uneccassary surgery.
I have had peritoneal dialysis and Haemo in the past. Haemo is a cruel aggressive treatment, but it keeps you alive.
I hope your husband doesn't wait too long for a donor graft.

 

[Roadrider48]

RR That's frightening to read and the fact that its a no symptoms illness is worrying. So much so having read it last night I had a restless nights sleep .
Goggled it today and realised that the bananas and Allbran breakfast I have been eating for years is not the best thing to eat. The 8th cannot come fast enough now. Hope your medication is continuing to keep you ok.

Sorry mate, it wasn't intended to frighten anyone. And that is my story; not everyone has the same symptoms.
I am well at the moment, thankyou.
Hope you get it sorted. There are many treatments available.

 

[hondated]

See your GP ASAP. My husband is on dialysis and awaiting transplant. Don't let it get that far. If you doc said they were going to monitor you and then didn't, is a good reason to see your GP and nag them.
I donated my left kidney to Hubs but it failed due to an auto immune disease after 5 years. I have annual monitoring and, if they are late with it, I ring them up and werritt at them until I am seen for the relevant tests.
Seriously, don't dilly-dally, get on to your doctor first thing tomorrow.

Thanks Saluki sorry to read your kidney didn't help hubby as it was very brave of you to donate yours. We have some friends and Bobs mum donated hers to him years ago and he recently had a scare that he now needed another. Because his brother wasn't keen on donate his Bobs wife a little reluctantly agreed to donate hers. I can understand her being reluctant because he obviously is fit and well as of cause is Bobs brother. Anyway they duly went through the process and literally days away from going into hospital they were told that that the test results were proven to be wrong and everything was ok for now.
I do realise that I need to see my doctor urgently but given I struggled to get an appointment for the 8th I am doubtful about getting an earlier one.So I should monitor closely how I am feeling and if I do feel worse I shall press for an earlier appointment.
Today I started to adjust my diet to see if that relieves some of my symptoms. Just hope your hubby gets his transplant asap. Ted

 

[hondated]

Sorry mate, it wasn't intended to frighten anyone. And that is my story; not everyone has the same symptoms.
I am well at the moment, thankyou.
Hope you get it sorted. There are many treatments available.

No need for apology RR as it just made me realise I shouldn't be treating my condition so casually. Ted

 

[Saluki]

Thanks Saluki sorry to read your kidney didn't help hubby as it was very brave of you to donate yours. We have some friends and Bobs mum donated hers to him years ago and he recently had a scare that he now needed another. Because his brother wasn't keen on donate his Bobs wife a little reluctantly agreed to donate hers. I can understand her being reluctant because he obviously is fit and well as of cause is Bobs brother. Anyway they duly went through the process and literally days away from going into hospital they were told that that the test results were proven to be wrong and everything was ok for now.
I do realise that I need to see my doctor urgently but given I struggled to get an appointment for the 8th I am doubtful about getting an earlier one.So I should monitor closely how I am feeling and if I do feel worse I shall press for an earlier appointment.
Today I started to adjust my diet to see if that relieves some of my symptoms. Just hope your hubby gets his transplant asap. Ted

5 years isn't a bad run Not sure about brave though, it was a no brainer really. His sisters weren't going to help, they made that quite clear. The first hint Hubster got of anything being wrong was an attack of gout. It was when he went to A&E and that was diagnosed - he thought he had broken his foot - and they said, we'll send the notes to your renal specialist and Hubs said 'what renal specialist?' that he was referred PDQ and was on meds within a week.

Try cutting out bananas, tomatoes and boiling all your veggies properly and draining and rinsing them before eating. Also don't eat jacket spuds. Keep your fruit and veg portions small too. Fruit and veg carry a lot of phosphates and potassium and, if your kidney is slowing down, it won't get processed properly. Keep an eye on your urine output too.
Ring and nag your doctor's surgery and say that it's quite important. I bet that they can see you before the 8th. Hubs' doctor, in the early stages when something could have been done to help, was not interested in anything but his paycheck but subsequent GPs have been amazing and really on the ball with his condition.

 

[Roadrider48]

5 years isn't a bad run Not sure about brave though, it was a no brainer really. His sisters weren't going to help, they made that quite clear. The first hint Hubster got of anything being wrong was an attack of gout. It was when he went to A&E and that was diagnosed - he thought he had broken his foot - and they said, we'll send the notes to your renal specialist and Hubs said 'what renal specialist?' that he was referred PDQ and was on meds within a week.

Try cutting out bananas, tomatoes and boiling all your veggies properly and draining and rinsing them before eating. Also don't eat jacket spuds. Keep your fruit and veg portions small too. Fruit and veg carry a lot of phosphates and potassium and, if your kidney is slowing down, it won't get processed properly. Keep an eye on your urine output too.
Ring and nag your doctor's surgery and say that it's quite important. I bet that they can see you before the 8th. Hubs' doctor, in the early stages when something could have been done to help, was not interested in anything but his paycheck but subsequent GPs have been amazing and really on the ball with his condition.

My initial renal failure was due to Gout aswell. I was treated for years with Indomethacin and eventually it buggered my kidneys. The Rheumotology clinic couldn't believe I'd been taking it for so long. I'm on Allopurinol now for the Gout, well for years now.
When my wife eventually called the ambulance (some 20 years ago now) I was almost dead and peeing out pure blood. Sorry, depressing I know.
Anyway, second transplant and all is ok at the moment. I had many problems during the first 3 years, but from then on it's been ok. I have other medical issues aswell.
I can't praise the hospital doctors and nurses enough. If I said thankyou everyday until I died it wouldn't be nearly enough.
I hope your husband gets sorted out soon, I really do.

 

[hondated]

5 years isn't a bad run Not sure about brave though, it was a no brainer really. His sisters weren't going to help, they made that quite clear. The first hint Hubster got of anything being wrong was an attack of gout. It was when he went to A&E and that was diagnosed - he thought he had broken his foot - and they said, we'll send the notes to your renal specialist and Hubs said 'what renal specialist?' that he was referred PDQ and was on meds within a week.

Try cutting out bananas, tomatoes and boiling all your veggies properly and draining and rinsing them before eating. Also don't eat jacket spuds. Keep your fruit and veg portions small too. Fruit and veg carry a lot of phosphates and potassium and, if your kidney is slowing down, it won't get processed properly. Keep an eye on your urine output too.
Ring and nag your doctor's surgery and say that it's quite important. I bet that they can see you before the 8th. Hubs' doctor, in the early stages when something could have been done to help, was not interested in anything but his paycheck but subsequent GPs have been amazing and really on the ball with his condition.

Thanks again interestingly trying to be health conscious I have jacket spuds rather than the alternatives and until you mentioned it fruit is another food I eat a lot. Blimey you cannot win can you !
I will try and nag the surgery as you suggest as well.

 

[jefmcg]

Thanks jefmcg I actually found the letter advising me that I needed to have a annual check up on my kidney and its worded that each year I should be pro active in arranging an

Have you followed up the instructions in that letter to make a nephrology appointment now? Even if your current symptoms are unrelated, you should start getting your annual check up from now on.

 

[hondated]

I have jefmcg and all they are telling me at the moment is that they have a locum in and unless it becomes more urgent then they cannot give me an earlier appointment.
I am actually going to see how I get on tonight, although I am camping in our garden with the grandsons tonight so it might be awkward, and if I have yet another restless night I will walk down to the surgery first thing to get an appointment for later in the day. That's how it works down here.
This isn't the first time I have had problems with getting my health sorted as without going into great detail I spent ages visiting the surgery and they kept trying to palm me off with anxiety pills. So not convinced I needed them I pursued the matter and after several tests they determined I had an hiatus hernia which was causing acid reflux.
It was part of that whole process and still not understanding why I had a pain in my left side and having been told my blood was ok that I pursued he issue and discovered that one of my kidneys wasn't performing 100% correctly.
There words then were "don't worry its an age thing " but we will monitor it annually. So foolishly I took them at their word and expected an appointment letter to arrive in 2015 which it didn't.
Anyway looking through my papers last week I found the letter they sent to me when I queried the blood results and in it they wrote " We ask that you have an annual blood test and urine sample for the kidneys so we monitor this but it is nothing to be alarmed about. "
I ask you nothing to worry about ! what else would anyone do other than worry.
I do think its been useful being a cyclist though because if I hadn't of struggled on a couple of routes I ride regularly without suffering then I might not have realised I had a problem. Thanks again for your kind words and advice. Ted

 

[hondated]

First of all apologies who may find this thread boring but to those that have offered advice thank you.
I have taken on board what you said about it being more urgent than what I thought it was and so I have just returned from my doctors surgery.
I have managed to circumvent ( blimey where did that word come from ) the system and now rather than waiting for my appointment on the 8th I have obtained the necessary form and tomorrow morning I will go to the local hospital who have a walk in service for blood tests. Hopefully I have nothing wrong but at least if I do I will know a good few days earlier. Now not sure whether I should starve for 12 hours though.

 

[Roadrider48]

First of all apologies who may find this thread boring but to those that have offered advice thank you.
I have taken on board what you said about it being more urgent than what I thought it was and so I have just returned from my doctors surgery.
I have managed to circumvent ( blimey where did that word come from ) the system and now rather than waiting for my appointment on the 8th I have obtained the necessary form and tomorrow morning I will go to the local hospital who have a walk in service for blood tests. Hopefully I have nothing wrong but at least if I do I will know a good few days earlier. Now not sure whether I should starve for 12 hours though.

I am sure you have nothing to worry about; more of a case of better being safe than sorry.
Good luck with that!
My fingers are tightly crossed for you.

 

[uclown2002]

@hondated so what happened?