My Prostate Cancer Journey and Why You Should Get Tested

[theloafer]

update..had more scans and it dose not bode well.... cancer spread through a lot of my bone`s next option is chemo which dr say may at best extend 3-4 months but i will poss be really bad as a dog... ☹️☹️

 

[SpokeyDokey]

update..had more scans and it dose not bode well.... cancer spread through a lot of my bone`s next option is chemo which dr say may at best extend 3-4 months but i will poss be really bad as a dog... ☹️☹️

My sincere sympathies.

Just finished my 8th week in hospital having chemo for leukeamia - it really is a grueling experience.

 

[postman]

So sorry to read this.All the best from me here.I am now 18 months in remission,and the weight is going back on ,after a sudden loss during my big diy task in May.Bloody cancer don't give up.

 

[theloafer]

update..had more scans and it dose not bode well.... cancer spread through a lot of my bone`s next option is chemo which dr say may at best extend 3-4 months but i will poss be really bad as a dog... ☹️☹️

new update ...
my stage 4 prostrate cancer is now in most of my bones ,and having tried a few options of 3 lots of tablets looks like its going to have its way ..turned down chemo as it would not be a lot of benefit, poss a few extra months but in those few months i would be bad as a dog .saw consultant yesterday and basic advice was go and enjoy your life . on the plus side i dont feel ill just very weary and get tiered very quickly .

 

[wilberforce789]

new update ...
my stage 4 prostrate cancer is now in most of my bones ,and having tried a few options of 3 lots of tablets looks like its going to have its way ..turned down chemo as it would not be a lot of benefit, poss a few extra months but in those few months i would be bad as a dog .saw consultant yesterday and basic advice was go and enjoy your life . on the plus side i dont feel ill just very weary and get tiered very quickly .

Horrible situation. Best wishes.

 

[SpokeyDokey]

new update ...
my stage 4 prostrate cancer is now in most of my bones ,and having tried a few options of 3 lots of tablets looks like its going to have its way ..turned down chemo as it would not be a lot of benefit, poss a few extra months but in those few months i would be bad as a dog .saw consultant yesterday and basic advice was go and enjoy your life . on the plus side i dont feel ill just very weary and get tiered very quickly .

V.sorry to hear this news.

Hope you can be kept pain free.

 

[blackrat]

new update ...
my stage 4 prostrate cancer is now in most of my bones ,and having tried a few options of 3 lots of tablets looks like its going to have its way ..turned down chemo as it would not be a lot of benefit, poss a few extra months but in those few months i would be bad as a dog .saw consultant yesterday and basic advice was go and enjoy your life . on the plus side i dont feel ill just very weary and get tiered very quickly .

Well, that stinks and you could be speaking exactly as if you were my brother - he lives near Norwich. His prostate cancer has metastasized into his bones. I wish he could see a better future, but he is settled now into an acceptance and although now tired of it all, he wants to enjoy the time he has left. His children and are always there with him, and that really does help.

Wishing you the very best.

 

[postman]

Hells bells i am so sorry.I am looking forward to be 'signed off' very soon after nearly two years of being Lymphoma free,all the best from me here.

 

[theloafer]

Hells bells i am so sorry.I am looking forward to be 'signed off' very soon after nearly two years of being Lymphoma free,all the best from me here.

that's great to hear postman wishing you well

 

[YMFB]

I’ve had the PSA blood test twice

March 2025 Prostate-specific antigen level 0.33 ug/L

March 2023 Prostate-specific antigen level 0.27 ug/L

But my peeing habits have changed, my flow rate is down, I often don’t empty my bladder properly and I’m up 3-4 times a night. In July as my HbA1c has come down to 50 I stopped taking Empaglifloxin which works by excreting glucose through urine. Previously stopping Empaglifloxin reduced the number of times I needed to pee in the night.

Yesterday I asked the diabetic nurse if I could change my blood pressure tablets as it’s now 117/71 and get a proper prostate examination, so I’m off to see my GP for digital intrusion.

I have two close friends who are going through prostate cancer journey and PT at the gym has recovered from it.

This is just a reminder to many of you to stop putting it off, if nothing else try the risk checker, link below

https://prostatecanceruk.org/risk-checker

 

[The Jogger]

Earlier this year I had several PSA tests in Spain where I was living, all were raised but the urologist said they were nothing to worry about and he would monitor it with his ultrasound machine. I asked him to send me for an MRI as it was all included in a top private policy but he said , 'what do you want one of them for?' Long story short, I sold up in Spain and we returned to our apartment which we kept in West Sussex just in case. My GP put me on the two week referral, I had all the usual tests , MRI, Biopsy, CT and Nuclear Bone Scan. I was advised I had PC and it was intermediate, Gleason 3+4 x 3 & 4+3 x 1 out of 18 samples. Contained to the prostate capsule. I'm 67
I was offered Robotic Prostatectomy or RT and Hormone Therapy the surgeon said I was healthy looking, slim and fit and would be an ideal candidate for the surgery, so on Dec 9th I'll be having the op. For someone who has suffered for years with Health Anxiety, I'm amazed at how I have accepted my situation and am just getting on with it, trying not to project. I'll be popping over to Spain for a week to finalise a few official things and hopefully, if all goes well, we're planning on getting a nearly new camper and travel. Fingers crossed.

 

[fossyant]

Friend has just had robotic surgery. all sort of discovered by accident from another health issue and then they didn't like his blood results, and lo and behold, PC. All the best all !

My sister has just had a lumpectomy for breast cancer.

 

[lazybloke]

Apols if this isn't news for everyone, but i'd never heard of this prostate treatment before: focused ultrasound, which heats and kills tumours causing far less damage to surrounding tissue/nerves than other treatments.

Apparently it's used extensively abroad (friend of a friend had the treatment in Sweden), and is very successful in cases with no more than 1 or 2 abnormalities.

It's available privately in the UK, and there are NHS trials in progress.

It doesn't cause scarring, so doesn't restrict your choice of other treatments if needed later.

 

[SpokeyDokey]

Earlier this year I had several PSA tests in Spain where I was living, all were raised but the urologist said they were nothing to worry about and he would monitor it with his ultrasound machine. I asked him to send me for an MRI as it was all included in a top private policy but he said , 'what do you want one of them for?' Long story short, I sold up in Spain and we returned to our apartment which we kept in West Sussex just in case. My GP put me on the two week referral, I had all the usual tests , MRI, Biopsy, CT and Nuclear Bone Scan. I was advised I had PC and it was intermediate, Gleason 3+4 x 3 & 4+3 x 1 out of 18 samples. Contained to the prostate capsule. I'm 67
I was offered Robotic Prostatectomy or RT and Hormone Therapy the surgeon said I was healthy looking, slim and fit and would be an ideal candidate for the surgery, so on Dec 9th I'll be having the op. For someone who has suffered for years with Health Anxiety, I'm amazed at how I have accepted my situation and am just getting on with it, trying not to project. I'll be popping over to Spain for a week to finalise a few official things and hopefully, if all goes well, we're planning on getting a nearly new camper and travel. Fingers crossed.

It's amazing what the human brain can handle.

Today I was in an ambulatory ward with 6 fellow sufferers (leukemia) all buzzy and jolly and yakking - about 10% illness related and 90% 'other' stuff.

For sure, we all have dark moments but generally you just accept things and crack-on with your life.

Best wishes & good luck to you.

 

[PK99]

As OP I'm pleased to see this thread popping up regularly as a useful forum.

I'm 2.5 years post op.

PSA below limit if detection.

Plumbing not quite as before, but pretty damn good. Especially as daily diuretic for other issues makes me need to pee alot mid morning.

Hydraulics, a long way from pre op. But hey ho mustn't complain too much.

I'm amazed at how being open.about my journey encourages others, here and in the real world, to open up and talk about their diagnosis and treatment.

Keep talking guys. It helps.