Treated For The Wrong Condition. Possibly!

[classic33]

Just back from the hospital, where I was told, that they may have been treating me, for half a century, for something I may not have.
He's uncertain what it may be, but feels it may not be epilepsy.

Fifty years of different medications, numerous specialists and countless trips to A&E over the years. All for the wrong reason.

Anyone else come close to it?

 

[Sbudge]

That's pretty impressive Classic, does that mean you're about to become a car driver then?

 

[Sbudge]

That's pretty impressive Classic, does that mean you're about to become a car driver then?

I've a couple of friends who've been treated similarly (but nowhere near as long). It seems sometimes the formula is 'fit = epilepsy (unless we can figure something else out)'.

 

[classic33]

That's pretty impressive Classic, does that mean you're about to become a car driver then?

Don't think it'd be that simple.

 

[vickster]

What else do they think it might be?

 

[classic33]

Uncertain at present, they want further tests carried out.

Sit and wait.

 

[Tin Pot]

Well, don't think about it too much until the rediagnosis is complete.

 

[vickster]

Ah good luck

 

[welsh dragon]

50 years with a wrong diagnosis must be a record. I've never heard that one.

 

[classic33]

Well, don't think about it too much until the rediagnosis is complete.

Getting the results of the cancer tests didn't hit as hard.

Ah good luck

Thanks

 

[HLaB]

Just back from the hospital, where I was told, that they may have been treating me, for half a century, for something I may not have.
He's uncertain what it may be, but feels it may not be epilepsy.

Fifty years of different medications, numerous specialists and countless trips to A&E over the years. All for the wrong reason.

Anyone else come close to it?

Thankfully I got a new doctor and only had three years of that and Phenotoin.

 

[Mrs M]

Good luck with the tests, hope you finally get some answers. xx

 

[raleighnut]

Jeez.

 

[ScotiaLass]

I hope they find the correct answers for you and you get some respite

 

[classic33]

Jeez.

One word for it. It's limited the work I could do, what I should be doing(no cycling), insurance. And if they do say it's not epilepsy, I'd still have to wait a year before thinking about applying for a driving licence. Year seizure free and signed off by a doctor.

Roughly half a million tablets taken since I started school.

It's not so much what is it? more a case of what if?