Any survivors on here, cardiac arrest, heart attack, cancer....

Discussion in 'Training, Fitness and Health' started by Colin_P, 8 Sep 2014.

Tags:
  1. I guess I've been fortunate with my first adult stay in icu. It had happened in Australia, not the UK.

    For me it was a case of going to the doctors with what I thought was my asthma out of control due to a chest infection. Last thing I remember were the surgery doors as I was being taken out to an ambulance. I came round the sometime later on a respirator in ICU after being airlifted from one hospital to another. 6 days on the respirator, 12 days in ICU, 3 weeks on a general ward with daily physio (about an hour) followed by 3 weeks of acute inpatient rehab. Physio 9-12 and 1:30-3 5 days a week. I had to learn to walk again, initially I was too weak even to move. It took me 2 days to be strong enough to write a few words with a nurse holding the clipboard.
    But I now have 12 months support from it inpatient rehab team including physiological help to deal with the issues. and I need it.
    I'm still useless at home. I managed to boil some eggs lay Friday, but the pan had to be on the stove with the water in it for me. The first week home I managed to break the kettle, no kidding. It was one of those clear plastic/glass ones that you can see the water in. It was empty so I tried putting a little water in it. It was too heavy and I ended up dropping it against the pan that was in the sink. It broke!
    Getting me had around the fact that I still can't manage any of what I did previously even a month after my discharge is getting too me. My 2nd physch appointment is next week. Luckily is a morning appointment because I'm usually asleep in the afternoon, exhausted from sitting all morning knitting or spinning, drawing or just watching my world go by.

    Right, it's nearly 8am, so in going to see if it's warm enough to sit outside yet. I hate being inside after not leaving the hospital for nearly 2 months.

    Edit: here's what happened... https://www.cyclechat.net/threads/severely-ill-yet-again.223981/
     
    Last edited: 9 Oct 2017
    Colin_P and NickNick like this.
  2. dave r

    dave r The Little Diesel

    Location:
    Holbrooks Coventry
    My best wishes for a speedy recovery
     
    Colin_P likes this.
  3. classic33

    classic33 Legendary Member

    It'll be slow getting back to what you used to do, and the frustration at not being able to do what you could before won't help getting over not being able to do what you could before. I tend to get shorter repeated reminders of this little fact.

    The world will still be there, at least upto 05:42(UTC) on Friday.
    How about a smaller kettle, metal, that can hurt your toes when it slips out of your hand. It's what I had at one stage, until I damaged a toe trying to kick it out of the way.
     
    dave r and Colin_P like this.
  4. Or just remembering to take the water to the kettle! There are kettle stands that allow you to tip it safely...

    My husband likes the clear kettle because he can see the build up of burnt eucalyptus leaves in it that way. (or water has no filter or treatment done to it. It is rain water direct, pure and simple, so the eucalyptus tree hanging over the roof of the building that catches the water (the barn) doesn't help matters...)
     
  5. classic33

    classic33 Legendary Member

    Mine are multiple short reminders, doesn't make it worthwhile buying the type of kettle you mean.

    Never had to bother with having to watch out for eucalyptus leaves, very few of them up here, in the kettle.
     
  6. classic33

    classic33 Legendary Member

    Just had a call asking if I can go back and repeat the MRI scan.

    That's a first. Repeated X-rays on the same day before, never a day after, unless it was to check progress or any change.
     
    dave r and Colin_P like this.
  7. ColinJ

    ColinJ A big clot!

    I got called back for a CT scan 2 years after!

    I had my lungs scanned when I first got ill in 2012. The scan also just caught the top of my kidneys and the doctors reviewing the images thought they had spotted something iffy.

    So, they dealt with my clots and ... that was it.

    2 years later they decided that perhaps they ought to check my kidneys!
     
    dave r and Colin_P like this.
  8. classic33

    classic33 Legendary Member

    Last one on Saturday was head to toe, the full picture. And now they want to repeat it. Looking at the bones again.

    Used to tests being repeated, a way of life almost.
     
    dave r and Colin_P like this.
  9. ColinJ

    ColinJ A big clot!

    Well, good luck with your ongoing health issues!

    My kidneys got the all-clear. Actually, there was something there but the interpretation of the test results was that they were seeing historical changes which were not progressing. (I think I had at least one kidney stone as a teenager - agonising pain one night, sweats, nausea, peed blood. It just went away by itself.)
     
    dave r, Colin_P and classic33 like this.
  10. classic33

    classic33 Legendary Member

    It's more what was seen this morning that got them repeating it, that's on my mind.

    Possibly nothing more than an over-reaction by me.
     
    dave r and Colin_P like this.
  11. ColinJ

    ColinJ A big clot!

    Understandable though. I immediately started worrying when they called me back for the kidney scan. I didn't have any symptoms and my kidney function was fine, it's just that once they thought that they had spotted something they had to keep looking.
     
    Last edited: 9 Oct 2017
    dave r, Colin_P and classic33 like this.
  12. DRM

    DRM Über Member

    Location:
    West Yorks
    Thats the thing, it can take some getting used to any niggles etc that occur, there's nothing wrong with you, but it's still there lurking in the back of your mind, is this happening again, you kind of know your ok, but it can worry you.
     
  13. I start the 'rounds' next week. Starting with a physch evaluation, then endocrine, immunology (they tested my blood extensively whilst I was in ICU and didn't like what they found, IgA and IgE are both well below normal, so I can expect much more blood to be removed as I get into the system....)... and then MRI scans of my pituitary adenoma to check it and size... and then... it goes on. Yesterday I had physio again (they came out to me for a second time) and today I am getting someone coming out to talk to me about the help I need around the home and with medical appointments. I can have upto 6 weeks help from someone in this area - I only really need help with things like cleaning and transport to and from appointments. There's not much else really that anyone can help me with. Though talking me out once a week to something like the local 'club' get together in the library (of all places) to chat for an hour or two would be nice. I haven't left my home now in over 3 weeks. That is my home and grounds... Hubby doesn't even bother asking if I want to come shopping with him. Often I end up sitting in the car whilst he goes around the shop, but I'm there with him for the travel, but he doesn't see that that counts. I think the physch appointments will be quite useful.

    And then I also have a referral for some new treatment called HF10 which is a spinal stimulator designed to limit chronic pain. The electrodes are actually implanted directly onto the spinal cord itself. The trial equipment is deigned to be worn on a belt around you, with the leads coming out through the skin for 2 weeks but the actual thing itself, if the device helps enough, is completely contained within the body. Apparently it is one of the very few pieces of medical equipment that can be worn through an entire flight which is useful to know.
     
    dave r and classic33 like this.
  14. swee'pea99

    swee'pea99 Legendary Member

    Five years and one month since I posted this:

    scar-jpg.jpg

    Last week I got my 'fifth anniversary' CT scan. Clean as a whistle.

    Without wishing to hex anything, surviving what I had, to the stage I had it, for five years, makes me, literally, a one in 20.

    I put it down to exercise, 'food, not too much, mostly plants', and a positive mental attitude. And beer of course.

    Keep pedalling folks - there really is no better medicine!
     
    slowmotion, Mrs M, flatflr and 7 others like this.
  15. flatflr

    flatflr Über Member

    Location:
    Just over here
    Quick up-date from me

    Have been back at work for a week now, boss made me leave early for the first 5 days back and has told me to take as much time as I need for recovery.

    Have had a few issues with my local doctors surgery:
    First they messed up my prescription only giving me half the amount of one item so the prescription is having to be re-issued and I’m a month behind in stock of that drug.

    Then when I spoke to one of the doctors on the phone the week before last it became apparent that she’s not even looked at my notes as I had to read out my treatment to her (same doc who signed off the incorrect prescription), but she did give me the ok to go on the turbo as long as I don’t let my heart rate go above 80bpm .

    I then realised that I should have had an appointment with my doctor to see how I’m getting on check my medication and get a referral for cardiac rehabilitation within a week of leaving hospital (this should have booked automatically). So far none of this has happened, so I’ve arranged an appointment myself to get this kicked off, if I'd not done it myself nothing would have happened (the Doctor I’ve booked it with does triathlons so will understand where I’m coming from for my rehab).

    Biggest issue that I am finding is stopping myself from doing too much as in myself as I want to carry on as normal as I’ve not had any tiredness.
     
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
    Dismiss Notice